Matthew's Coming Home!!!

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Matthew's coming home this friday! We're very excited, but pretty nervous about it as well. Plus, we've still got a LOT to do before he comes home:

  • Learn about all his medication (he's on about 8 different ones)
  • Learn to put in his feeding tube
  • Learn to use the haberman feeding bottle
  • Have the oxygen tanks installed at home
  • Find a pediatrician
  • Install and have the carseats checked out
  • Nair the cats
  • Finish cleaning the house
  • etc.

He will be coming home on oxygen and a monitor (for when he feeds). He's fine (and doesn't need to be on a monitor) most of the time, but he still forgets to breathe sometimes when he's feeding from a bottle. This causes him to choke which freaks him out and he drops his heart rate (and O2 saturation) pretty significantly. It's not always immediately apparent by looking at him, so we requested that they send him home with a monitor until he gets better at feeding from a bottle.


WOOOOHOOOOO!!!!!!!! I'm so excited, I don't even know what to say but woooohoooooo!!!!!! Praise the Lord - what a little miracle you have :-D

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This page contains a single entry by Jason published on November 4, 2003 10:00 AM.

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